Mar 9, 2012

Living in a concrete world

http://www.thewesternstar.com/Wellbeing/2007-10-20/article-1465785/Living-in-a-concrete-world/1

Rituals and routines take over life for man with Aspergers syndrome

Tom Jackman lives in a concrete world.

It's a world with walls no one else can see.

The tall 30-year-old is soft-spoken, but articulate; both shy and gregarious. His personality often leaves people who meet him finding it hard to believe he has a form of autism.

Jackman wants to develop a network of peers, but as someone who's dealing with Asperger's syndrome, it's been hard at times to make friends.

Tom Jackman lives in a concrete world.

It's a world with walls no one else can see.

The tall 30-year-old is soft-spoken, but articulate; both shy and gregarious. His personality often leaves people who meet him finding it hard to believe he has a form of autism.

Jackman wants to develop a network of peers, but as someone who's dealing with Asperger's syndrome, it's been hard at times to make friends.

Like other people with Asperger's, Jackman has a daily routine that, in his mind, must be strictly followed - that's his concrete world. Unfortunately, that trait can make it difficult for people with Asperger's to find work.

"People with Asperger's are obsessed with routines and rituals," Jackman explained.
"I almost see that in places I go to - I'm almost going to the same places every night. You would think you would go to different restaurants or try something different (but) you don't like change.
"I was living in a certain place and moved out. Even though I kind of hated living there, my mom literally had to drag me out of it."

Jackman is one of about 20 people with Asperger's - also known as high-functioning autism - who uses the services of the Autism Society of Newfoundland and Labrador, and its facilities, including the Elaine Dobbin Centre for Autism and Shamrock Farm, both located on Clinch Crescent behind the Janeway Children's Hospital in St. John's.

Heather Bartlett, the program manager at the facility, said they don't know how many people in the province have Asperger's. It often goes undiagnosed, more so than other forms of autism, because people with Asperger's have high levels of communication.

Bartlett said students who have it can find it difficult to shift their focus and attention from one concept to another. Such behaviour can be mistaken for defiance. It can lead to a lack of social interaction, and can be misdiagnosed as a learning disability or a form of mental illness.

"It was difficult fitting in with a group," Jackman acknowledges.
"It was hard making friends. You get a lot of acquaintances, but it's hard to make friendships."

Jackman was diagnosed two years ago and said he's only now beginning to realize that many problems he had when he was younger stemmed from Asperger's, which is considered a developmental disorder.

People with Asperger's can have trouble with the subtleties of communication. They can have difficulty maintaining eye contact, for example. And while they may possess a great command of language, they often don't understand nuance, taking sarcasm and metaphors literally.

Those with Asperger's can also find it hard to express emotions. Another common trait, according to Bartlett, is that they find it extremely difficult to be untruthful, even in terms of polite white lies.

People with Asperger's are also often loyal, dedicated, knowledgeable people with good memories.

"Kids in school (with Asperger's), cognitively, they are on par with their peers. … when young, they might be a little shy or awkward," Bartlett says.
"Unless they're disruptive, there's really no red flags."

Jackman is enrolled in vocational programs and supported-living arrangements, with the help of the Autism Society. His goal is to find full-time employment, and a level of independent living. He said he simply needs someone to check in with him periodically to make sure he's keeping his life on track.

The autism centre, meanwhile, is pushing for funding so it can offer its services right across the province. Shamrock Farm is intended to eventually be a fully functioning agricultural operation, providing employment to those with autism.

ASPERGER'S SYNDROME - The Boy Inside

ASPERGER'S SYNDROME

  • Asperger Syndrome is an Autism Spectrum Disorder (ASD) and was first included in the Diagnostic and Statistical Manual (American Psychiatric Association) under the general category of Pervasive Developmental Disorders (PDDs) in 1994. In Vienna, pediatrician Hans Asperger wrote about this cluster of characteristics as early as 1944.
  • Although research on the prevalence rate for Asperger Syndrome is ongoing, it is thought that as many as 60 individuals per 10,000 have some form of an Autism Spectrum Disorder.

    Based on current population statistics for Ontario, this prevalence rate translates to 74,356 individuals in Ontario living with an Autism Spectrum Disorder.
  • Asperger Syndrome traits may make it difficult for children to function well in school and for adults to find and keep employment.
  • Many individuals with Asperger Syndrome exhibit extensive knowledge of a specific interest and therefore are capable of major accomplishments.
  • Although Asperger Syndrome can be first detected in childhood, many individuals are not diagnosed until well into adolescence or adulthood.
  • The cause of Asperger Syndrome is not yet established, but a leading theory at this time points to genetic causes. Many individuals diagnosed with Asperger Syndrome identify similar traits in their family members.
  • Treatments for people with Asperger Syndrome may include counselling, psycho-education, social skills training, medication, family intervention, occupational therapy, speech-language pathology, special diets, and others.
  • Without diagnosis, support and intervention, children, adults and their families struggle to understand their puzzling profile of strengths and deficits.
     
Common Traits of Individuals with Asperger Syndrome

Social/Communication Traits:

  • Despite a desire for friends, difficulty in initiating or maintaining close relationships
  • Problems reading non-verbal or social cues or understanding/using social rules
  • Very socially naïve and as a result are often taken advantage of, rejected, or bullied
  • Social contact may be directed by them (e.g. play is “on their terms” or not at all)
  • Poor (or intense) eye contact, atypical use of gestures and flat or inappropriate facial expressions
  • One-sided conversations, and little ability for “small talk”
  • May appear overly shy or overly extroverted, but inappropriately so
  • Unaware of others’ thoughts, feelings or perceptions resulting in inadvertently appearing rude or inconsiderate
  • Literal interpretation of communication from others
  • Avoidant of social contact or events, and may experience heightened anxiety in social situations
  • Language is learned and used in "chunks" (e.g., phrases, dialogue from TV shows, etc.)
  • Communication is used for delivering information or requesting, not as a way of interacting socially

Behavioural Traits:

  • May respond poorly to changes, sensory stimuli, transitions, lack of structure, and restrictions
  • Repetitive movements (e.g., jumping, rocking, pacing) and speech (i.e., talking about favourite topics, interest)
  • Rigid, inflexible and rule-bound behaviour
  • Inappropriate behaviour given the social situation (e.g., speaking too loud in place of worship)
  • Exaggerated emotional response to situations (e.g., tantrums when asked to something that they don’t want to do)
  • Superior ability to focus on favourite activity or area of interest (e.g., spends hours mastering video game to the exclusion of other pastimes)

Cognitive Traits:

  • Average to superior intelligence
  • Detail oriented approach to tasks which may result in missing the “bigger picture”
  • May have associated learning disabilities (e.g., non-verbal learning disability)
  • Often have high verbal scores in a cognitive assessment, and low performance scores
  • Difficulty seeing “parts-to-whole” and “whole-to-parts” relationships
  • Prefer technical/factual information over abstract

Associated Challenges:

  • Anxiety and depression
  • Attentional difficulties (e.g., shifting attention; attending to unimportant stimuli)
  • Tics or Tourette Syndrome
  • Gross and fine motor deficits
  • Poor organizational skills (e.g., time management and planning, partializing tasks)
See list to the right for external links.

Aspergers looms over many marriages

http://www.healthzone.ca/health/newsfeatures/article/1021434--aspergers-looms-over-many-marriages